Grief is a unique experience, and each person will experience this differently, no matter their age, location, cognitive ability or neurotype. Often, grief support focuses on word-based ways to work through grief, such as writing in a diary or talking to a loved one or professional who will listen. Whilst these are great tools for lots of people, some neurodivergent children and young people may experience grief in their bodies and brains differently from their neurotypical peers and may face challenges recognizing and communicating this. 

Most children will feel able to open up and engage with others when they feel safe. This safety is again, different for all children so use your knowledge of your child to create a safe environment for them. This can increase the likelihood of them sharing their more difficult thoughts and feelings surrounding their grief.  

Though this body-brain response to grief is common in neurodivergent children, all children are neurodiverse (as this word describes the wide diversity in all brains), and the death of a loved one can be traumatic for all children. Because of this, many of the ideas in this blog will offer practical help for all children and young people, whether diagnosed as neurodivergent, on a waiting list for assessment, or not.  

Safety and connection for neurodiverse children

Neurodivergent children benefit from understanding, acceptance, accommodations and adjustments that support their unique needs, especially after a bereavement. When this happens across all settings, e.g. home, school, college, and clubs, it can improve stability and predictability, ultimately creating an experience that feels safe for your child to explore their feelings of grief. This might include providing items they feel connected to such as toys, teddies, plants, animals or characters which can present a “safe” way for them to work through their grief.  

Grief is incredibly complex at the best of times and for many children, this may mean a change in their behaviour. Some children may experience attachment issues or regression; for neurodiverse children, these things can sometimes be intensified. It can therefore be helpful to:  

• Offer to stay with them to help them regulate their feelings and their bodies, but respecting their decision to be alone if that’s what they want  

• Encourage them to continue with activities/interests that they enjoy  

• Avoid situations that may increase their stress levels where possible  

• Provide a space to connect with friends, key adults or Winston’s Wish practitioners who are outside of your immediate family if they would like to 

 

Grieving as an adult whilst supporting a grieving child can be incredibly challenging; don’t be afraid to engage with professionals for support. Early help can offer a good platform for support, or you can talk with your child’s health visitor, school nurse, nursery, school or college.  

If you have any concerns about your child managing day-to-day tasks, speak to their GP for advice.  

Sensory processing differences

Neurodivergent children may have differences in how their brain receives, interprets and responds to sensory information. This means that, at any time, they may experience heightened or reduced sensitivity to input (such as noise, light, textures, smell, touch, and motion), which can affect how they move and interact. These responses may include:  

• An increase in fidgeting, chewing or stimming 

• Heightened response to the texture of clothing and increase in preferences 

• Altered responses to smell  

• An increase or decrease in activity level  

• An increase in impulsive behaviour   

 

To learn about some ways to help a child having difficulties with their sensory differences, read our blog about supporting a bereaved child who has autism. Speak to your GP or browse the NHS website to explore additional information about sensory differences.  

Bodily cues

Neurodivergent children, including those with ADHD, autism, hypermobility and many more conditions, often report interoceptive differences. This means they may have difficulty noticing body signals resulting in missing cues that inform their emotional or physical experience. This may cause changes such as: 

• Feeling the pain of grief physically in their bodies  

• Changes in eating habits, including overeating or reduced appetite 

• Regression in continence or other aspects of their independence  

• Changes in sleeping habits  

• Changes in their approach to hygiene, e.g. showering more, or resisting bathing  

Try to help the child connect the dots between what they are feeling inside and how to support themselves. Our activities for children can help with this.  

Emotional regulation and communication differences

Managing emotions can be particularly challenging for neurodivergent children who may experience intense distressed behaviours or difficulties in recognising, connecting with, and expressing their emotions. Following a bereavement, their window of tolerance may also change regularly as a result of:  

• Where they are  

• Who they are with  

• What time of day it is  

 

You may find that they show increased distressed behaviours, cry more or less than you anticipated, laugh at unusual times, experience mutism or other communication struggles, experience their feelings more intensely and even feel less confident. You can help them through this by: 

• Providing safe physical outlets for their emotions, such as beating a drum, stamping their feet, or kicking a ball  

• Follow their lead and listen to what they need to do in that moment, e.g. talking, writing or using familiar technologies such as laptops, mobiles and tablets 

• Providing opportunities for them to express themselves without words, for example by using playdough or drawing  

• Meeting them with compassion if they are unable to do their normal tasks  

• Offering extra help with their physical needs such as eating, sleeping, washing, exercising and resting, but still respecting their boundaries around these.  

 

Neurodivergent children can respond well to things that allow them to use their body and brain without talking, such as through music, pets, sound, art, movement, Lego, and sand trays. Here at Winston’s Wish, we can offer creative therapies to children who may find talking to a counsellor in the traditional sense more challenging. Discover more about creative therapy in this blog. 

Finally, neurodivergent children can be especially sensitive to the emotions of others. It is important for all family members to be able to express their own grief naturally, but it is good to have an awareness that this may impact a neurodivergent child in different ways. Explaining to all children that grief is individual, no two people will experience it in the same way, and however they experience it is okay, knowing this can help validate their feelings.  

How to get immediate grief support

If you need advice on supporting a bereaved child or young person, you can call the experienced Winston’s Wish team on 08088 020 021 (8am-8pm, weekdays), email us on ask@staging.winstonswish.org or use our live chat (8am-8pm, weekdays).

For out-of-hours mental health support, you can use Shout’s 24/7 messenger service by texting WW to 85258. For urgent support, please call 999.

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Winston’s Wish is delighted to be partnering with Teapot Trust, a mental health charity that provides support and improves the lives of children living with chronic health conditions through art therapy. Together, the charities will signpost children and young people to one another’s services and provide mutual training for staff from both organisations. This will make sure children and young people are able to access the right support at the right time.  

Members of Teapot Trust Young Voices highlighted the complexity of living with chronic illness and grief. It was noted that little support and information currently exists about this so this partnership aims to change that, putting the voices of young people at the centre and developing a ‘toolbox’ of accessible and relevant tools. 

Excitingly young ambassadors and volunteers from Winston’s Wish and Teapot Trust will work together to co-produce a resource aimed at helping children living with chronic illnesses deal with grief and bereavement. 

Ally Lloyd, Teapot Trust Young Voices Participation Officer comments, “As a charity supporting the mental health of children and young people living with chronic illness, we see the complex ways in which bereavement affects, and is affected by, living with a chronic illness. Living with a chronic illness can affect the way a young person is able to grieve and access support.  

“Bereavement and grieving can be very physical experiences that can lead to flare-ups and worsen symptoms for folk living with a chronic illness. As individuals, families, friendship groups, and communities, young people have (through necessity) worked out how best to manage this. This project is a supportive space to bring these experiences, learnings, and questions together. Together, as Winston Wish’s Youth Team and Teapot Trust’s Young Voices, we can better understand the complexities of chronic illness and bereavement and take the first steps to making that experience easier for others.” 

“It’s so exciting to begin this partnership with Teapot Trust to combine the very real experiences of being bereaved whilst living with a chronic illness. The concept for this project came from the young people themselves, wanting to make sure others were supported and recognised in their experience, and it is these voices that will drive and develop the partnership.”

 

Fenella Prior-Smith, Head of Youth Participation at Winston’s Wish

The partnership will draw upon the lived experiences of young people from Winston’s Wish and Teapot Trust.  

Amber, Teapot Trust Young Voices Volunteer, comments, “I’m really looking forward to working on such an important, needed project. Chronic illness and bereavement are incredibly complicated. Not only can it impact the way you are able to grieve loved ones, but it also exposes you to unique kinds of grief like having people you know with similar conditions to you die or witnessing deaths whilst admitted to hospital. It’s an area that currently doesn’t feel very well-resourced or understood, so I hope this collaboration between Winston’s Wish and Teapot Trust can start the conversation and begin to fill the gap in resources.” 

Winston’s Wish Youth Ambassador Eden, 21, comments, “I wanted to get involved as I feel it is important for those of us with chronic illness to share our views on how grief affects us as sometimes it can be even harder especially if we aren’t able to distract ourselves by taking part in hobbies, socialising, etc due to limited energy so think it’s important our voices and experiences are represented and I’m looking forward to making a difference.” 

True to the charity’s vision that no child is left to grieve alone, Winston’s Wish is keen to ensure its services are visible to grieving children and young people throughout the UK and is committed to reaching those with additional needs and disabilities.  

Winston’s Wish is delighted to partner with Teapot Trust and is looking forward to creating this specialised resource following the launch of this meaningful co-production project. 

You might also be interested in

Bereavement training for professionals

We offer a range of training, from support immediately after a death in your school community to free online lessons that you can download via our website and even tailored sessions to meet the needs of your school or organisation.

View our training courses and give yourself the skills and confidence to support bereaved pupils in your classroom.

Resources for Schools

Access our resources library for schools, that offer guidance on creating bereavement guides, strategies and charter documents.

By using our templates you can have a strategy to support children and young people in your classroom following a death in the school community.

Rocco’s Godmother, Claudia:

Rocco White was the 4^th baby of my best friend, Samya, and my godson. He was an identical twin with Winston and has an older brother, Otis, and sister, Mila, who were 3 and 5 when Rocco died suddenly on 11^th December 2018, aged 6.5 months. He was the most perfect delicious squidge and such a content baby. He had a little mole on the back of his neck, which is how we could tell the boys apart, and how I knew he was “my one”.

Rocco’s mum, Samya:

Losing Rocco had a huge impact on us as a family. Our other children were so young at the time, so it was hard to know how they were feeling, and I focused my attention pretty much entirely on helping them navigate through it. My main goal was to ensure that they were not negatively impacted and that they would still have a strong and supportive mother to lean on. As I started working through things in therapy, I realised that I needed to spend more time hearing how they were feeling and try to sit in the grief with them. This was so hard as I had spent so long trying to avoid it and go through the motions. When Covid hit shortly after, it was just me and the kids trying to get through each day. It was really hard to watch Winston grow and do things alone without his twin brother. It has always been a fear of mine that he would forever feel like something was missing and that he would be sad. That was really difficult in the beginning and still is today, but I try not to project my own fears onto him because the majority of the time he is doing just fine.

Claudia, Rocco’s Godmother, introduced me to Winston’s Wish. It was so relatable to my situation, having 3 young children, including Rocco’s identical twin, Winston, to navigate through grief, and the fact the charity was called Winston’s Wish made it even more special.

We were looking at ways to continue to do good for Rocco. When we came across this charity supporting bereaved children and saw its name, it was so fitting. We had to support it. For Winston and for Rocco.

 

Samya

Mila, Otis, and Winston were so young when we lost Rocco that it was hard for them to process. On the day he died, Mila asked me, when I came home from the hospital, if Rocco was back. I was still in shock but I had to tell my 5 year old that her baby brother was an angel now. The next day she drew a picture of our family with Rocco as an angel.

We’ve been lucky enough to have the resources to help the kids with therapy, which we started straight away after Rocco died. That was a huge support and everyone in our family still engages in therapy in one way or another.

Winston is always open to hearing about his twin and will randomly ask me, “how did Rocco die again?” just as I’m putting him in the bath or making dinner. He also is very protective of him and refers to him as his twin rather than just his brother. He said that if Rocco was still here he would want him to sleep in the same bed as him.

Otis finds it hard to talk about still. If I’m reading a book to Winny about Rocco or looking at pictures of them Otis often can’t stay in the room. He just finds it too sad. But we don’t stop talking about him in front of him. All of the kids have pictures of Rocco in their room.

About a month ago, Mila came up to me and said, “I’m feeling sad about Rocco.” That was the first time since he died that she ever initiated a conversation about her brother. My own therapy has meant that I’ve been looking at some of his things and I found the picture she drew of him as an angel. It was that that led her to want to talk about him. We looked at photos, read stories, and looked through all the boxes I have with things that belonged to him. I was so proud of her. She said she felt more confident to ask – I think she meant she was starting to feel ok with feeling sad about it. I haven’t seen her want to do that in the last 6 years. It helped me a lot to have her there to support me. It was a really nice moment.

We fundraise for Winston’s Wish every year. We have done sponsored runs and bike rides and always ask for donations on the anniversary of his death.

 

Samya

We relate so much to the charity and recognise how important their work is. We have received so much support from our community and we want to help others to have the same.

We have always wanted to shine a light at Christmas from Rocco. At his funeral, one of the songs we sang was, ‘This Little Light of Mine’. Each year at Christmas we try to help other children because we can’t buy Rocco a gift, as much as we desperately wish we could. So we look for ways for Rocco to make other children have a happier Christmas. The ‘Colour their Christmas’ campaign felt like Rocco’s light would be felt, and light up Christmas for children facing a very difficult time.

We celebrate him every single year on his birthday. We meet up with friends and blow out candles for him on a cake. We always have a theme where we ask our friends and family to show him some love. One year, we asked everyone to make a cake, another we asked for everyone to do an act of kindness in his honour, and another year we did “rocks for Rocco” where we asked everyone to paint rocks with messages on and hide them in places for people to find.

This year, on his birthday, our friends hosted a concert in his honour. They organised a number of singers and musicians together from our local secondary school to raise money for Winston’s Wish and even some of my old school teachers attended.

We even have a giant mural on the side of a building in East London of a giant dragonfly, which a friend painted. It says “For Rocco” at the bottom and is one of the most amazing things anyone has ever done for us. The story of the water bugs and the dragonflies is a really poignant and important story for us. I was told the story by a priest on the day he died and it gave me a lot of comfort. I have clung on to the symbol of the dragonfly since that day.

We have a memorial leaf in the children’s water bug and dragonfly garden at Mortlake Crematorium, which provides a place for us to go where we feel close to him particularly on the more difficult days and the special days.

 

Samya

On the anniversary of his death, we do something similar. We gather with friends and ask people to do something in his memory. One year, we did “Roc around the Christmas tree” where people sent videos of themselves and their kids dancing around their trees. Another year, we did a toy drive for The Toy Project and another time we asked everyone to make him a Christmas decoration and light candles for him.

Another time, we hosted a number of grottos which we named “Rocco’s Grotto.” We had a Santa and a photographer and people brought gifts to donate to charity.

We also ask people to think of him when they see a beautiful sunrise and I have received hundreds of photographs of sunrises that people have sent me. I have printed off a number of them and framed them so the kids and I can see them everyday. We have set up a special page for remembering him on Instagram and we post everything that people do in his honour.

We also have a Christmas tree just for Rocco. We decorate it with blue lights as the colour blue has become traditionally the colour we associate with him – blue balloons, blue hearts. On the anniversary, the children and their friends decorate his tree with homemade decorations. One Christmas, we had all the kids and their friends make decorations so we have hundreds of blue hearts and stars for his tree.

Rocco matters so much. The amount he continues to achieve and do is a comfort and a positive to come from the absolute worst experience. He is our driving force. He knew only love in his lifetime, and we will continue to share his love to others forever.

 

Samya

Whether you are a grieving young person who wants to talk to someone or a parent, carer or professional looking for guidance, you can reach out to our bereavement team using one of our confidential on-demand services. Nothing is off limits. We’ll listen without judgement and you can chat to us anonymously if you’d prefer. Whether it’s a one-off or a conversation you need to come back to, you can reach us on the different ways listed below.

Get support

Winston’s Wish provides support for grieving children, young people (up to 25) and adults supporting them. Please call our Freephone Helpline on 08088 020 021 (open 8am-8pm, Monday to Friday) or email ask@staging.winstonswish.org  

If you need urgent support, the Winston’s Wish Crisis Messenger is available 24/7 for free, confidential support in a crisis. Text WW to 85258. 

We’re sharing this piece written by Jason King, Head of Quality and Standards at Westerleigh Group, to dispel a few myths around crematoriums and help you understand more about visiting with a child or young person.

If you’ve never been to a crematorium before, you may think of them as being sombre, gloomy places that you would only visit if you were attending a funeral. You could certainly be forgiven for asking why anyone would choose to spend time there, let alone visit with a child.

Westerleigh Group is one of the UK’s largest independent owners and operators of crematoria and cemeteries, with 41 sites in England, Scotland and Wales. Every one of them is set within beautifully landscaped gardens of remembrance which provide peaceful places for people to visit and reflect, as well as being bio-diverse habitats rich with plant and wildlife. People do not just visit a Westerleigh Group crematorium to attend funerals, they go at all different times to remember loved ones in a welcoming, comforting, environment. One of the most effective ways to find out exactly what a crematorium is really like is to visit one – and not wait until it is time to attend a funeral.

Westerleigh Group’s crematoria run open days and also have an open door policy, which means anyone is welcome to contact their nearest site and arrange a mutually convenient time to visit. This provides opportunities for people to explore the grounds and our chapels, meet our dedicated colleagues and ask any questions at all about what happens in our crematoria. If they wish, visitors can go ‘behind the scenes’ and take a tour of the crematory, too. It’s so important that visitors feel welcome and comfortable when they visit any of our crematoria, and that applies even more to children.

Funerals can, of course, be very emotional events, and the right environment and setting can go a considerable way towards making that experience a little easier. It’s understandable that someone might think that they would never consider visiting a crematorium with a child unless they really have to. But it should be remembered that children are not immune to grief when a loved one dies.

It’s important to give them a chance to feel included in what other family members are experiencing. Clear, simple, language should be used when talking to children about death, and they should be encouraged to ask questions and express their feelings. You should be honest, and provide reassurance, as children may not understand the concept of death in the same way that adults do, but will still experience grief in their own way, which is why they should be included. Winston’s Wish can help you find the words to explain anything about death, dying, and grief. You can contact them on weekdays from 8am to 8pm for immediate support by phone, email, or live chat.

One of the most commonly asked questions is, ‘how do we know for sure that our loved one is really inside the coffin?’, which is a perfectly reasonable thing to consider. We never open a coffin when it arrives at any of our crematoria, but we carry out important identification checks and scrutinise the accompanying paperwork. From the moment that a coffin comes into our care, we apply the exceptional standards of service that Westerleigh Group has built its reputation on. Part of that involves a thorough audit trail which is maintained and followed, all the way from the moment the coffin arrives at the crematorium right up to the final return of the ashes to the family. We conduct this audit trail with meticulous attention to detail.

Another common query concerns what happens towards the end of a ceremony, when the curtains close. Many people believe that the cremator is either directly behind the wall on the other side of the curtain, or that the coffin is lowered directly into a cremator, and that the process begins straight away. This is not always the case. When the curtains close, the coffin is very carefully transferred to the crematory, and the cremation itself takes place within the shortest possible time. Whereas typically a funeral service can last between 10 minutes and 1 hour, the average cremation process takes one and a half hours, so you can see how, if there are several services in a day, the actual cremation can’t happen at the same time.

The other question we are often asked is, ‘what happens to the ashes after cremation?’ There are many choices, from scattering or burying them in the garden of remembrance which includes a wide range of memorial options. There is no need to make a hurried decision about the final resting place of the ashes. Some families prefer to hold onto them until they decide what to do, but we also have the facility to care for the ashes until a decision is made.

We are also often asked if we can personalise our chapel, making it more welcoming for all family and friends of the deceased, not just for children. And the answer to that, of course, is yes. We pride ourselves on doing whatever we can to make a service as uniquely personal as possible. For example, we recently hosted a traditional service for a young family who lost their mother. We re-arranged the chapel for an ‘afternoon tea’ – one of her favourite activities – so that her family could have one last special ‘picnic’ with her before saying goodbye. 

The exceptional care and support that Westerleigh Group provides to the bereaved does not stop at the end of a funeral service. My biggest piece of advice to anyone who has any questions at all about the cremation process is to contact their nearest Westerleigh Crematorium and arrange a visit – for them, and their children – and to see for themselves that our crematoria are very peaceful and comforting surroundings served by caring and compassionate colleagues. 

If you’re supporting a child or young person and would like to ask questions and find out more about the language you can use to explain grief, death, and dying to them, please reach out to Winston’s Wish. Immediate support is available over the phone, by email, or on our live chat, and you don’t have to join a waiting list to speak directly to a Bereavement Support Worker. 

Accessing Support

Speak to our bereavement support team to talk about supporting a bereaved child of young person, or know a child or young who would like to talk to someone through our On-Demand services.

Call us for free on 08088 020 021 between 8am-8pm, weekdays.

Email us on ask@staging.winstonswish.org or fill out our contact form and we’ll reply within two working days.

Chat online between 8am-8pm, weekdays by clicking the blue ‘Chat with us’ button at the bottom right of your screen.

For out of hours mental help support, text WW to 85258 to speak with someone from our trusted partner, Shout. For urgent support in a crisis, please call 999.

Winston’s Wish has officially partnered with Olive Academies, a pioneering multi-academy trust, specialising in alternative learning provision supporting 7-16-year-olds who are unable to attend mainstream schools to reach their full potential. 

After identifying that 19% of academy students have experienced bereavement, with a significant proportion bereaved by acts of domestic violence, the partnership will see Winston’s Wish deliver specialist training for staff supporting bereaved pupils and offer direct support for students through the charities innovative digital bereavement services.  

Our partnership with Olive Academies provides specialist training support to students and teachers who are either going through bereavement or supporting those that are. It is an honour to be working with such a proactive organisation whose aim is that every child and young person has the right to learn and achieve.

 

Fergus Crow, CEO of Winston’s Wish

Helena Boast at Olive Academies, said: “The specialist work of Winston’s Wish directly impacts so many of our pupils experiencing bereavement and grief, helping them to move on with their lives and thrive. 

“Providing access to professional child-centred bereavement support, information and resources through this partnership is a wonderful addition to the high-quality pastoral care already in place across our academies. I am delighted to be able to offer this service to our pupils, their families and academy staff.” 

To date, 50 staff working across five academies in Havering, Thurrock, Cambridgeshire and Suffolk have received specialist training covering an introduction to childhood bereavement, the impact of grief at different ages and stages and how to help. 

Since attending the training 98% of academy staff said they would recommend the sessions and 74% rated their confidence in supporting a bereaved student as 4/5 after receiving the training. 

You might also be interested in

Bereavement training for professionals

We offer a range of training, from support immediately after a death in your school community to free online lessons that you can download via our website and even tailored sessions to meet the needs of your school or organisation.

View our training courses and give yourself the skills and confidence to support bereaved pupils in your classroom.

Resources for Schools

Access our resources library for schools, that offer guidance on creating bereavement guides, strategies and charter documents.

By using our templates you can have a strategy to support children and young people in your classroom following a death in the school community.

A new All Party Parliamentary Group (APPG) on Childhood Bereavement has been proposed with the aim of raising awareness of the impact of bereavement on children and young people and encourage debate between children, young people, families, and professionals to develop policy solutions. MPs are now being encouraged to join the planned group to advocate for the needs of bereaved children and young people in their constituencies…and we need your help to reach them!  

Christine Jardine MP is behind the planned group with Winston’s Wish as the secretariat. To mark Children’s Grief Awareness Week 2024 Christine will be hosting an event for MPs with organisations in the sector so they can hear more about the impact of grief and bereavement from Winston’s Wish, Widowed and Young, the Childhood Bereavement Network and ABC Grief.  

Winston’s Wish is also imploring local MPs to make the needs of the bereaved children and young people in their constituencies a priority and consider joining the APPG.  

You can help by letting your local MP know about the group and encourage them to stand up for the grieving children and young people in your communities by joining the planned APPG.  

Send a letter, email or send a message on Facebook or X (formerly Twitter) using our template, simply personalise the details where prompted. You can find your MP and their contact details at members.parliament.uk/FindYourMP  

As the UK’s first childhood bereavement charity, Winston’s Wish acknowledges how important it is that the often overlooked topic of childhood bereavement should be discussed at a policy level. CEO of Winston’s Wish Fergus Crow commented: 

“Childhood bereavement is an often-overlooked issue that affects thousands of children across our nation each year. According to estimates, approximately 1 in 29 children will experience the death of a parent or sibling before they reach adulthood. That’s at least one child in every classroom.   

“The impact of loss during formative years can be profound, leading to emotional distress, academic challenges, and social withdrawal. Without appropriate support, these children may struggle with mental health issues such as anxiety and depression and are more likely to engage in risk taking behaviours, hindering their ability to thrive both personally and academically. It is imperative that we prioritise their needs within governmental policies and frameworks.”  

We implore MPs to make the needs of the bereaved children and young people in their constituencies a priority and consider joining the APPG.

 

Fergus Crow, CEO of Winston’s Wish

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Support for Parents and Carers

Caring for a bereaved child or young person can be complex. While we can’t take away a young person’s loss, we can help you to help them thrive again.

We offer a range of support to families, so you can help the child or young person in your life, navigate their grief.

Support for Schools

Teachers play a vital role in the lives of bereaved children and young people, and often many don’t receive bereavement training.

At Winston’s Wish, we want to change that, which is why we provide guides, resources, free online learning and tailored training sessions for schools and professionals.

Winston’s Wish service user and supporter, Lisa, shares how we supported her children, Olivia, Tilly and Ellis after their dad died in 2016.

“When Christmas came that first year without him, our walls started to crumble, the bubble burst and none of us wanted to even mention the word “Christmas.” It was too painful, like the world had turned to black and white.

“Thanks to support from people like you, we were introduced to Winston’s Wish, and this is when the colour started to slowly return to our lives.

“My husband Gavin had been unwell for several years before finally being diagnosed with a rare form of blood cancer. Our children, Olivia (12), Tilly (9) and Ellis (6) were so young during those first years of his illness, when he was back and forth to the hospital for chemotherapy.

“After his diagnosis he received a bone marrow transplant and was in remission, but a year later, he relapsed and had to start chemotherapy again. Gavin battled for another 2 years, and although there was hope along the way we knew we weren’t going to get the ending we wanted. So we did as much as we could with the children to create memories that they would be able to cherish forever.

“Gavin died on the 6th May 2016 and Olivia, Tilly and Ellis were left without their dad.

“One of the most powerful aspects of Winston’s Wish is that they recognize the unique needs of each grieving child. It’s a tricky place being the parent of a child that’s grieving. You want to make things right for them, you want to make them feel better, but you know that ultimately what they want is something you can’t change.”

After my dad died, I was in denial that it had even happened. I remember feeling so confused about the situation and why it had happened to our family. I had a lot of unanswered questions that Winston’s Wish helped me through.

 

Olivia Hepburn, Winston’s Wish Youth Ambassador

“My other daughter, Tilly was quite vocal with how she was feeling about missing her dad, and Ellis was much younger, he had almost shut it all out or didn’t quite understand, he was so little. I remember thinking ‘Are we actually going to be able to get through this?’

“Winston’s Wish provided us with the tools we needed to make it through those first heartbreaking years, and they need your support to ensure other families like mine are aware of their bereavement support services. Knowing that they are there no matter how much time has passed is truly invaluable and makes you feel less alone.

“Although Christmas is still a difficult time of the year, with the support of Winston’s Wish we have started to bring the colour back into Christmas. We still follow our old traditions, but we also have new traditions to make it that little bit easier to manage. We have a Christmas tree in the kitchen dedicated to Gavin which the children decorate an ornament for each year, they also all write a letter to their dad on Christmas Eve sharing their favourite memories from the year, and we play “Driving Home for Christmas,” the song Gavin always played on his way home from the airport. It’s these little things that keep his memory alive for them, and for me.

“Winston’s Wish have been a lifeline during some of our hardest moments, helping to bring back the colour when it felt like we could only see in black and white. With their help, we’ve found ways to smile through the tears and remember Gavin not just with sadness but with fond memories.”

This Christmas, Winston’s Wish will be hosting parties for bereaved children. For some this will be their first Christmas without their loved one, and they are still seeing in black and white. Each party will feature a silent disco, a way to remember their loved one, games, and a gift from Santa.

These parties will help introduce families like mine to these incredible services, giving them that same feeling of a big pair of arms to wrap around them, bringing colour back into their lives.

 

Lisa Hepburn

There are children on the start of their journey with grief who feel like that colour will be gone forever. Your donation today can introduce them to the incredible support Winston’s Wish are able to offer. You can help ensure that families like the Hepburn’s aren’t facing their grief alone. You can help to colour their Christmas.

Your donation, no matter the size, will help make these parties possible and create special moments for bereaved children and young people.

Thanks to one of our incredible supporters, the first £20,000 in donations received this Christmas will be doubled, meaning your donation can have twice the impact to bereaved children and young people.

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Winston’s Wish Christmas Parties

This December we’re hosting Christmas parties in Cardiff, Middlesbrough and Manchester, exclusively for bereaved young children.

Each party will feature a silent disco, arts and crafts, a games station, party food and a gift from Santa.

Grief support over winter

Grief during the Winter and Christmas time can be difficult. We’re here to help with advice and personal stories from our bereavement team and those with experience of grief.

Take a look at our series of support that you and the child or young person you are supporting can access over the winter period.

Caroline received the devastating news that her husband, Steve, had died by suicide after he had been missing for two days. It was a complete shock to Caroline and her family, and there had been nothing to make her believe that this would be the outcome when she initially reported him missing.

Their youngest child, Ada, who was just two, was at home. Their eldest, Evie, who was nine, was at school when the police arrived to deliver the shattering news. Caroline had no choice but to make some quick decisions about how to tell the children. Fortunately, her best friend, Emma, offered support. Emma called Winston’s Wish straight away and gathered as much information as possible for Caroline to feel equipped and able to tell her daughters what had happened.

I was stunned by this life-shattering news and clueless about what I needed to do. My children were my absolute priority, but I had no idea what words to use in a situation like this.

 

Caroline

At Winston’s Wish, we encourage clear and direct language when talking about death. Telling each child may be different depending on their level of understanding, and we offer further advice about telling a child someone has died, how to explain suicide to a child or young person, and further suicide bereavement support.

That phone call Emma made to Winston’s Wish on the day Steve went missing would certainly not be the last. Immediate Bereavement Support is a service you can use as much as you need to, and the purpose of the call, email, or chat does not always need to be about something big or complex. It could be a worry about new developments in your child’s grief journey that you would like to chat about or something about their behaviour that might be concerning you. Caroline says she’s extremely grateful for the Winston’s Wish on-demand services and she would regularly call in the first few years to try to understand and cope with changes in her daughters’ grief.

Everything about this situation was new to me. I had so many questions about what to expect when it came to my girls’ grief and how I could support them with it all while managing my own feelings of loss. It wasn’t just Steve’s death we were dealing with, the fact that this was suicide brought about a huge amount of additional challenges for the girls and I too.

 

Caroline

Through Winston’s Wish, Caroline received some little worry dolls for the girls, which she says they were able to whisper their worries to as part of their ‘healing journey’. It was something Caroline remembers as a ‘lighter and brighter moment in the darker days’.

‘Beyond the Rough Rock’ is a book by Winston’s Wish that offers practical advice for families immediately after learning about a death by suicide, which Caroline also received early on. She says this book has been invaluable as her daughters have grown up. Evie has been through emotions and experiences at very different times to her younger sister, Ada.  Having this resource to work through with each of them at different periods of time has been incredibly helpful to Caroline and she says she keeps it close by even now as a source of comfort for whenever she may need it again. You can buy and download the e-book here.

Caroline’s daughters are doing amazing things in their young lives and learning to express their grief in their own individual ways. From writing and playing music to advocating for mental health in their schools, Caroline feels they are able to be so confident in themselves due to the immediate support received from their community, a large part of which came directly from Winston’s Wish. Evie has even won a National Mental Health Award for the work she has been doing which includes sharing her story through a very touching animation about language. You can watch the short video here.

Vocalising my experience gave me the chance to share my truth and open up about how I’d been feeling. I wanted to start a conversation about the language used around suicide, and this animation is helping to start a dialogue around the country, which makes me so proud.

 

Evie

Six years after their family life changed forever, Caroline has published a book called Daddy Blackbird: the true story of a family surviving and thriving after loss by suicide, and you can buy the book on Amazon or reach out to Caroline directly (caroline@daddyblackbird.com) and receive a copy of the book after leaving a donation online for Winston’s Wish.

I wrote Daddy Blackbird to help others understand what life is like when the unthinkable happens and to bring some degree of comfort and relatability to those who find themselves in a similar position, particularly when young children are involved. I also wanted to pass on some of the helpful things I have learnt and to share some of the amazing support I have received too.

 

Caroline

Caroline says Winston’s Wish is so important to her, and she feels closely connected to the charity because of the support she received since the day they discovered Steve had died, and every day she has called the helpline or referred to the resources since.

Whether you are a grieving young person who wants to talk to someone or a parent, carer or professional looking for guidance, you can reach out to our bereavement team using one of our confidential on-demand services. Nothing is off limits. We’ll listen without judgement and you can chat to us anonymously if you’d prefer. Whether it’s a one-off or a conversation you need to come back to, you can reach us on the different ways listed below.

Get support

Winston’s Wish provides support for grieving children, young people (up to 25) and adults supporting them. Please call our Freephone Helpline on 08088 020 021 (open 8am-8pm, Monday to Friday) or email ask@staging.winstonswish.org  

If you need urgent support, the Winston’s Wish Crisis Messenger is available 24/7 for free, confidential support in a crisis. Text WW to 85258. 

The death of a public figure can significantly affect children, as well as adults. This could be their first experience of death, and they might not really understand it, or maybe they have been bereaved and this brings up those difficult feelings again. After the death of a celebrity, the news and social media will be talking about it, so it’s important to know how to talk to a child or young person you’re supporting. 

Being a similar age to Liam Payne, I followed One Direction’s journey from day one, and their music was hugely impactful in the world of pop in my mid-late teens. One of the biggest songs, and debut single, “What Makes You Beautiful”, was released on 10 August 2011, and I remember so distinctly playing it in my first car and singing along to it with my friends. Even though I never met Liam, following One Direction’s journey in my teens made me feel so connected to them. This is something lots of people might relate to with different celebrities, especially when we’ve watched a person’s life play out on our screens or through music. Listening to Liam’s music may or may not be a comfort at this time, and it’s completely valid to grieve his death. 

Liam’s death is such a huge shock for people of all ages, across the whole world, and my thoughts are with his son, family, and friends. I was bereaved as a child too, and I hope Liam’s son receives the support needed to help him understand what’s happened. At Winston’s Wish, we offer bereavement support for free to grieving children, young people (up to 25), and their families.

 

Jess, Winston’s Wish Content Manager

Use clear, age-appropriate language

Although it’s tempting to use terms like ‘gone to sleep’, ‘passed away’ or ‘lost’, this can be confusing to children who often take things literally. If they’ve gone to sleep, why can’t we wake them up? If they’re lost, why can’t we find them? Although using words like ‘dead’, ‘died’ and ‘death’ might feel blunt and harsh, these words make it easier for children to understand the finality of death.  

How to explain what death is

This might be a child or young person’s first experience of death and, if they are younger, they might not fully understand what death actually means. This can be confusing and frightening for them. Our Bereavement Support Team have written this clear way to explain the concept of death: 

When someone dies, their body has stopped working and they can’t be brought back to life. They are no longer able to do the things they could when they were alive, such as move or talk. When someone dies, their heart stops beating, they stop breathing, their brain stops thinking. 

Be honest

Without clear information, children might ‘fill the gaps’ themselves to try and understand what is happening. If you’re able, it’s better to be open, honest and direct when talking about death. There will also be lots of information available to them elsewhere – on TV, online, overhearing conversations and playground talk. This can mean that children imagine all sorts of things about a death, which are often worse that the reality. 

Let them know their feelings are normal 

Whatever the child or young person is feeling, whether it’s anger, sadness, guilt, worry, confusion and more – these are all valid, normal reactions after learning about the death of someone. They may not be upset because they didn’t really have a connection to the celebrity, and that’s fine. However, if they are upset, it would be unhelpful to say something like, ‘you didn’t know them so you can’t be sad’, and, instead, reassure them that it’s okay to feel what they’re feeling because their connection is real to them. 

Get support

Winston’s Wish provides support for grieving children, young people (up to 25) and adults supporting them. Please call our Freephone Helpline on 08088 020 021 (open 8am-8pm, Monday to Friday) or email ask@staging.winstonswish.org  

If you need urgent support, the Winston’s Wish Crisis Messenger is available 24/7 for free, confidential support in a crisis. Text WW to 85258. 

How to talk to children about death

Bringing up the topic of death with children and young people can be difficult and feel uncomfortable, but it’s important to have these conversations.

To help, we’ve put together a guide to support you in talking about death to the young people you are supporting.

Talking about sudden death with children and young people

When someone in your life dies, feelings of grief can be overwhelming. These feelings can be even more difficult to handle if the death is sudden, traumatic or violent.

We’ve put together some tips and advice to starting conversations around sudden death, so you can better support the children and young people in your life.

Creative Therapy is a way for children and young people to process their grief when they may not be ready to talk or have the language to explain what they are feeling. Books, games, art, journalling, play and music can provide a space that allows children and young people to explore feelings and experiences at their own pace, in a way that feels safe and developmentally appropriate.

Creative Therapy can be especially helpful for children and young people who have Special Educational Needs and Disabilities (SEND), younger children, or anyone who struggles to put their grief into words.

How is Creative Therapy different from Counselling or Talking Therapies?

We ensure that children and young people’s confidentiality is respected, with a child or young person’s consent. Key themes of the therapy can be communicated by the therapist to family members or key members of their network.

If children prefer not to talk, they can draw, play, share special interests and make things all while building a trusting relationship with the therapist in a safe, supportive environment where themes of grief and dying can be explored in a way that feels right for them.

Sessions can be shorter than traditional counselling session of 50 minutes if that suits the need of the child, although they still will be at the same time and day each week.

The child may find ways of remembering their important person who died through art, music, collage, scrapbooking or photography. If so, we will work together to make sure the child has the resources they need to do this.

Children under 13 are required to have a parent, carer or adult in the session, but we can plan and accommodate this need for young people also.

How does it work online?

In your assessment session your therapist will talk to you about the types of activities the child enjoys, and depending on their interests will ask you to provide basic materials you may already have, e.g. pens, paper, beads, modelling clay. They may also send you some resources to use in sessions, it’s helpful if you can keep these in a safe place and have them ready at the beginning of each session.

The child and the therapist may also play games online together, so exploring whether the child can share the screen and use the whiteboard on Zoom would be helpful. The therapist may also share links with your child to play games online.

How might it help?

Creative Therapy provides a safe space for children to express their grief which they may find difficult to put into words.

Some children lose confidence after a bereavement, and Creative Therapy focuses on helping children to feel empowered and having a choice about what they do, which often results in increased self-esteem and resilience.

Sometimes children can explore alternative behaviours and coping strategies that may lead to them finding their grief easier to manage.

With the child’s permission, some elements of the sessions can be communicated to a trusted adult, which may help in finding ways for the child to process their grief or make changes at home or school to try and make life easier for them. For example, this could be highlighting an area of confusion for the child, noting an activity that seems to be particularly soothing for them or recommending resources, games or books that have been helpful in the sessions.

Meet Sophie, the creative therapist who delivers the digital creative therapy at Winston’s Wish to help children and young people express their grief when they don’t want to talk or have the language skills to put their grief into words.

Accessing Support

Speak to our bereavement support team for further information by using our on-demand services.

Call us for free on 08088 020 021 between 8am-8pm, weekdays.

Email us on ask@staging.winstonswish.org or fill out our contact form and we’ll reply within two working days.

Chat online between 8am-8pm, weekdays by clicking the blue ‘Chat with us’ button at the bottom right of your screen.

For out of hours mental help support, text WW to 85258 to speak with someone from our trusted partner, Shout. For urgent support in a crisis, please call 999.